TY  - JOUR
  - Savage, E.
  - 2007
  - January
  - The Journal of Childrens and Young Peoples Nursing
  - The contribution of specialist nurses to the management of cystic fibrosis in Ireland
  - Published
  - ()
  - 1
  - 4
  - 180
  - 185
  - Eileen SavageJournal of Children's and Young People's Nursing 1(4): 180 - 185 (Aug 2007)The management of cystic fibrosis is complex and involves multiple health professionals. In European standards of care for delivering the best possible outcomes for patients and their families, specialist nurses are identified as integral to the multidisciplinary management of cystic fibrosis (Kerem et al, 2005). However, little is known about the contributions that specialist nurses make to the management of cystic fibrosis from the perspectives of children and their parents. This paper examines children¿s and parents¿ perspectives on how specialist nurses help them manage cystic fibrosis. The data are drawn from a larger study involving 32 Irish children (aged 6¿14 years) and their parents. Interviews were the main method of data collection and a method of constant comparison was used to analyse data. Specialist nurses were described as making a particular contribution to helping children and parents manage challenges and difficulties that arose in their daily lives. Specifically, specialist nurses helped by being accessible, forming personal relationships, having `expert¿ knowledge and attending to emotional and social care of children and their parents. However, the organizational context of clinic consultations placed limitations on specialist nurses addressing concerns of relevance to children¿s and parents¿ day-to-day lives. Implications for practice in addressing these limitations and for further developing the role of specialist nurses especially during clinic consultations are considered. Areas for further research on the role of specialist nurses are identified.
  - 1753-1594
DA  - 2007/01
ER  - 

@article{V27578025,
   = {Savage,  E. },
   = {2007},
   = {January},
   = {The Journal of Childrens and Young Peoples Nursing},
   = {The contribution of specialist nurses to the management of cystic fibrosis in Ireland},
   = {Published},
   = {()},
   = {1},
   = {4},
  pages = {180--185},
   = {{Eileen SavageJournal of Children's and Young People's Nursing 1(4): 180 - 185 (Aug 2007)The management of cystic fibrosis is complex and involves multiple health professionals. In European standards of care for delivering the best possible outcomes for patients and their families, specialist nurses are identified as integral to the multidisciplinary management of cystic fibrosis (Kerem et al, 2005). However, little is known about the contributions that specialist nurses make to the management of cystic fibrosis from the perspectives of children and their parents. This paper examines children¿s and parents¿ perspectives on how specialist nurses help them manage cystic fibrosis. The data are drawn from a larger study involving 32 Irish children (aged 6¿14 years) and their parents. Interviews were the main method of data collection and a method of constant comparison was used to analyse data. Specialist nurses were described as making a particular contribution to helping children and parents manage challenges and difficulties that arose in their daily lives. Specifically, specialist nurses helped by being accessible, forming personal relationships, having `expert¿ knowledge and attending to emotional and social care of children and their parents. However, the organizational context of clinic consultations placed limitations on specialist nurses addressing concerns of relevance to children¿s and parents¿ day-to-day lives. Implications for practice in addressing these limitations and for further developing the role of specialist nurses especially during clinic consultations are considered. Areas for further research on the role of specialist nurses are identified.}},
  issn = {1753-1594},
  source = {IRIS}
}