@inbook{916a7836a774493f88e3cfc08a264fe7,
title = "Care and design: An ethnography of mutual recognition in the context of advanced dementia",
abstract = "While there have been considerable developments in designing for dementia within HCI, there is still a lack of empirical understanding of the experience of people with advanced dementia and the ways in which design can support and enrich their lives. In this paper, we present our findings from a long-term ethnographic study, which aimed to gain an understanding of their lived experience and inform design practices for and with people with advanced dementia in residential care. We present our findings using the social theory of recognition as an analytic lens to account for recognition in practice and its challenges in care and research. We discuss how we, as the HCI community, can pragmatically engage with people with advanced dementia and propose a set of considerations for those who wish to design for and with the values of recognition theory to promote collaboration, agency and social identity in advanced dementia care.",
keywords = "Dementia, Ethnography, Experience-centered design, Recognition theory",
author = "Sarah Foley and Nadia Pantidi and John McCarthy",
note = "Publisher Copyright: {\textcopyright} 2019 Association for Computing Machinery.; 2019 CHI Conference on Human Factors in Computing Systems, CHI 2019 ; Conference date: 04-05-2019 Through 09-05-2019",
year = "2019",
month = may,
day = "2",
doi = "10.1145/3290605.3300840",
language = "English",
series = "Conference on Human Factors in Computing Systems - Proceedings",
publisher = "Association for Computing Machinery ",
booktitle = "CHI 2019 - Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems",
address = "United States",
}