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Current transition management of adolescents and young adults with allergy and asthma: A European survey

  • Ekaterina Khaleva
  • , Marta Vazquez-Ortiz
  • , Pasquale Comberiati
  • , Audrey Dunngalvin
  • , Helena Pite
  • , Katharina Blumchen
  • , Teresa Garriga-Baraut
  • , Valerie Hox
  • , Alexandra F. Santos
  • , Claudia Gore
  • , Rebecca C. Knibb
  • , Cherry Alviani
  • , Charlotte G. Mortz
  • , Elizabeth Angier
  • , Bettina Duca
  • , Britt Jensen
  • , Silvia Sanchez-Garcia
  • , M. Hazel Gowland
  • , Frans Timmermans
  • , Oliver Pfaar
  • Graham Roberts
  • University of Southampton
  • Imperial College London
  • University of Pisa
  • Sechenov First Moscow State Medical University
  • Pirogov Russian National Research Medical University
  • CUF Descobertas Hospital and CUF Infante Santo Hospital
  • NOVA University Lisbon
  • Goethe University Frankfurt
  • Hospital Universitari Vall d'Hebron
  • Université catholique de Louvain
  • King's College London
  • Guy's and St Thomas' NHS Foundation Trust
  • MRC & Asthma UK Centre in Allergic Mechanisms of Asthma
  • Imperial College Healthcare NHS Trust
  • Aston University
  • Isle of Wight NHS Trust
  • University of Southern Denmark
  • Hospital Infantil Universitario Nino Jesus de Madrid
  • Allergy Action
  • Nederlands Anafylaxis Netwerk—European Anaphylaxis Taskforce
  • University of Marburg
  • University Hospital Southampton NHS Foundation Trust

Research output: Contribution to journalReview articlepeer-review

Abstract

Background: Transition from parent-delivered to self-management is a vulnerable time for adolescents and young adults (AYA) with allergy and asthma. There is currently no European guideline available for healthcare professionals (HCPs) on transition of these patients and local/national protocols are also mostly lacking. Methods: European HCPs working with AYA with allergy and asthma were invited to complete an online survey assessing challenges of working with these patients, current transition practices and access to specific healthcare resources. Results: A total of 1179 responses from 41 European countries were collected. Most HCPs (86%) reported a lack of a transition guideline and a lack of a transition process (20% paediatric HCPs, 50% of adult HCPs, 56% HCP seeing all ages). Nearly half (48%) acknowledged a lack of an established feedback system between paediatric and adult medical services. Many respondents never routinely asked about mental health issues such as self-harm or depression and are not confident in asking about self-harm (66.6%), sexuality (64%) and depression (43.6%). The majority of HCPs (76%) had not received specific training in the care of AYA although 87% agreed that transition was important for AYA with allergy and asthma. Conclusion: Although there was agreement that transition is important for AYA with allergy and asthma, there are crucial limitations and variations in the current provision of transition services across Europe. Standardisation of AYA management and specific training are required. This should improve management and continuity of care during adolescence and into adulthood to achieve the best healthcare outcomes.[Figure not available: See fulltext.]

Original languageEnglish
Article number40
JournalClinical and Translational Allergy
Volume10
Issue number1
DOIs
Publication statusPublished - 7 Oct 2020

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

  1. SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well-being

Keywords

  • Adolescent
  • Allergy
  • Healthcare professional
  • Transition
  • Young adult

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