Parents Perceptions of the Psychosocial Impact of a Nurse-Led Paediatric Haematology Oncology Outreach Service for Children in Their Own Homes

A childhood cancer diagnosis has a devastating, long lasting impact on the child and their family. Providing care at home can potentially minimise the physical, emotional and financial strain.

A nurse-led paediatric haematology oncology outreach service in Ireland, provides home care for children with cancer, offering clinical, psychological and social care. While the role of the outreach nurse is well documented, little is known about what parents value or deem important in such a service.

The aim of this study was to evaluate the psychosocial impact of a paediatric haematology oncology outreach service from the perspective of families in receipt of the service.

In-depth interviews were conducted with a purposive sample of parents of children receiving the haematology oncology outreach service for a minimum of two months. Thematic analysis was applied.

Parents were overwhelming positive about the service. All stated that the standard of care at home was equivalent to that provided in the hospital. Maintaining a normal childhood and preserving family life were highlighted as the key psychosocial benefits. Perceived advantages included reduced travel to hospital, reduced risk of infection, liaison with services, advocacy, and the sharing of nursing knowledge and skills.

Paediatric oncology outreach nurses are an essential psychosocial support to children with cancer. Their presence enhances the coping mechanisms and autonomy of the child and family.Practice Implications The findings highlight the psychosocial benefits of home-care services and provides a template for future closer to home child- service development.