Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials

Ciara Buckley; Shaun Treweek; Lynn Laidlaw; Frances Shiely

doi:10.1186/s13063-022-06980-9

Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials

Ciara Buckley
, Shaun Treweek
, Lynn Laidlaw
, Frances Shiely

University of Aberdeen
Health Service Research Unit

Research output: Contribution to journal › Letter › peer-review

Abstract

We recently reported that according to patients and healthcare professionals in breast cancer and nephrology trials, teams conducting the trials got their choice of primary outcome wrong (72% of the time) more often than they got it right (28% of the time). A Patient and Public Involvement (PPI) representative, co-author of this letter, asked (on Twitter) whether PPI contributors had been involved in the design of the original trials and by extension the outcome selection. The purpose of this study was to answer this question.

Original language	English
Article number	93
Journal	Trials
Volume	24
Issue number	1
DOIs	https://doi.org/10.1186/s13063-022-06980-9
Publication status	Published - Dec 2023

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being
SDG 16 Peace, Justice and Strong Institutions

Keywords

Clinical trials
Outcomes
Patient and public involvement/PPI
Trial methodology

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10.1186/s13063-022-06980-9

Cite this

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title = "Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials",

abstract = "We recently reported that according to patients and healthcare professionals in breast cancer and nephrology trials, teams conducting the trials got their choice of primary outcome wrong (72\% of the time) more often than they got it right (28\% of the time). A Patient and Public Involvement (PPI) representative, co-author of this letter, asked (on Twitter) whether PPI contributors had been involved in the design of the original trials and by extension the outcome selection. The purpose of this study was to answer this question.",

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AU - Buckley, Ciara

AU - Treweek, Shaun

AU - Laidlaw, Lynn

AU - Shiely, Frances

PY - 2023/12

Y1 - 2023/12

N2 - We recently reported that according to patients and healthcare professionals in breast cancer and nephrology trials, teams conducting the trials got their choice of primary outcome wrong (72% of the time) more often than they got it right (28% of the time). A Patient and Public Involvement (PPI) representative, co-author of this letter, asked (on Twitter) whether PPI contributors had been involved in the design of the original trials and by extension the outcome selection. The purpose of this study was to answer this question.

AB - We recently reported that according to patients and healthcare professionals in breast cancer and nephrology trials, teams conducting the trials got their choice of primary outcome wrong (72% of the time) more often than they got it right (28% of the time). A Patient and Public Involvement (PPI) representative, co-author of this letter, asked (on Twitter) whether PPI contributors had been involved in the design of the original trials and by extension the outcome selection. The purpose of this study was to answer this question.

KW - Clinical trials

KW - Outcomes

KW - Patient and public involvement/PPI

KW - Trial methodology

UR - https://www.scopus.com/pages/publications/85147460811

U2 - 10.1186/s13063-022-06980-9

DO - 10.1186/s13063-022-06980-9

M3 - Letter

C2 - 36747232

AN - SCOPUS:85147460811

SN - 1468-6708

VL - 24

JO - Trials

JF - Trials

IS - 1

M1 - 93

ER -

Patient and Public Involvement (PPI) in outcome selection in breast cancer and nephrology trials

Abstract

UN SDGs

Keywords

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