Perspectives on death, dying and advance care planning from patients receiving haemodialysis

Background: The illness trajectory of End Stage Kidney Disease (ESKD) is not linear therefore it can be difficult for practitioners to know when end-of-life care begins. Advance care planning (ACP) allows patients to take part in decision making, however much of the research conducted stems from North America and Canada where individuals have experience of ACP. The aim of the study was to determine the views of Irish patients receiving haemodialysis, on death, dying and ACP. Methods: A quantitative, descriptive design was used with a convenience sample of 50 patients. Data were collected by means of a researcher administered questionnaire and analysed using descriptive statistics. Findings: The majority of participants were comfortable talking about death, but not necessarily among family, with most desiring medical interventions to prolong life. The control of pain and other symptoms, being physically comfortable and being at peace spiritually were the most important issues at end of life. Conclusion: This study provides an insight into what is important to patients in relation to death, dying and advance care planning.