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The myotubular and centronuclear myopathy patient registry: a multifunctional tool for translational research

  • Joanne Bullivant
  • , Anando Sen
  • , Jess Page
  • , Robert J. Graham
  • , Heinz Jungbluth
  • , Ulrike Schara-Schmidt
  • , Orla Lynch
  • , Carsten Bönnemann
  • , Aart den Hollander
  • , Anne Lennox
  • , Dionne Moat
  • , Claudia Saegert
  • , Kimberly Amburgey
  • , Ana Buj-Bello
  • , James J. Dowling
  • , Chiara Marini-Bettolo
  • Newcastle University
  • Boston Children's Hospital
  • King's College London
  • University of Duisburg-Essen
  • National Institutes of Health
  • Zusammen Stark
  • Myotubular Trust
  • Independent Patient Representative
  • Hospital for Sick Children
  • Université d'Évry Val-d'Essonne

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